CAMDEX-DS-II: A Comprehensive Assessment for Dementia in People with Down Syndrome and Others with Intellectual Disabilities (2nd edition) – Informant Questionnaire

The CAMDEX-DS-II is a fully updated second edition of a validated assessment for diagnosing dementia in people with Down Syndrome (a group known to be at particular risk of dementia) , as well as others with intellectual disabilities. In order to differentiate decline due to dementia or other mental health issues from pre-existing impairment, particular emphasis has been placed on establishing change from the individual's best level of functioning. The CAMDEX-DS-II comprises a comprehensive manual including guidance for diagnosis, a structured informant interview to collect information about presenting symptoms and clinical history, a direct participant assessment (CAMCOG-DS-II) , and a picture book to use in conjunction with the participant assessment. The CAMDEX-DS-II nmay be used in community settings by health professionals as part of the diagnostic process, or to formalise diagnosis in the context of research. The Informant Interview is a structured interview carried out in the absence of the person with Down Syndrome or other intellectual disabilities, with a relative or carer who has known them well over time.